Sunday, January 16, 2011

homies for the holidays

twas the night before christmas and pacito came running out of his babysitter's house in the dark with these babies on. it cheered us up, but he wasn't too thrilled.

christmas was... interesting. everyone was sick and pretty darn tired. his mom got hit with something like strep and his dad got something like the flu. we had lots of quarantine and lots of chores to keep it sano around here. we loaded up with extra z packs and both of the folks went through one round of the antibiotics. franco came and helped us sooooo much! don't know what i wouldv'e done with out my momma. she is amazing.

i was thoroughly exposed, but fought it off like a luchador ninja thai fighter. lots of symptoms but no defeat! i used everything in our arsenal from ozonated water to mushroom derived anticancer supplments. i did NOT want to get this and pass it onto n! to boost our efforts, cho and i made this gnarly, good soup from zuppa! (great italian country soup book).it's called poor man's soup with field herbs or something to that effect. i doubt many peasants could afford it. italians load it with greens and herbs: watercress, kale, mustard, dandelion, spinach, parsley sage, rosemary, thyme etc. then you top it with an herb, walnut, cream garnish after it's been cooked for hours with pork fennel sausage and cranberry beans (we used good mother stallards from rancho gordo... yummmmm... highly recommended). i felt like i was going to die after i ate this. cho loved it and felt fantastic. vive le french genes! apparently it's the italian peasant remedy for kidney problems. umm... eat at your own risk!!!!!! i did manage to sneak a few presents in. we didn't have a tree, but i had visa points so ho ho ho!tubbery got a new cashmere sweater! ...and chonis! sorry, but if you follow this blog, you've noticed that has been his wardrobe since june. maria even felt sorry enough for him to buy him a 6 pack of hanes white t-shirts for a gift. she was showing me up so i had to take action. she acted impressed, but was probably thinking, it's about time she got the poor guy some new underwear!for the record, i also got him a meaningful gift: simpsons season 6 with his favorite episode "homer badman" where homer is accused of sexually harassing the babysitter by removing the gummy venus de milo from her rear end. n has recalled this episode in detail to meag and me over the years to illustrate many points, which i'm sure were just excuses to make the conversation more interesting.
he has gained nearly 12 lbs. after doing 4 umbilical stem cell treatments. it's pretty amazing, but as i always have to say, i can't get my hopes high cuz it's too painful. i'm just thankful for where we are at now. he is still bed-ridden and dependent on us for full-time help and still has the port in his chest. we are looking forward to a few more treatments and seeing what will happen. when i sponge bathe him i see a terribly crooked spine and i can't fathom how it will be repaired sans a total miracle. but we know our Creator and trust Him no matter what. the routine has become exhausting. i am working 40 hours again, plus go dog go when i come home. just can't keep up with much beyond the basics. we ask for God's help and are receiving it though it has become quite hard.who let the dork out? anyhow, thanks for checking in. we love you and don't know everyone who's out there reading, but we'll keep you posted.
in His grace,
rocko

Monday, December 20, 2010

lamowonderland

warning: this post is for indulgent snow and dog lovers... so hopefully you can all be happy!
the weather outside was frightful! not really. it was beautiful. but driving home after work on thursday after sundown on a slippery snow packed and blizzardy freeway was terrifying and i won't be doing that again if i can help it!
apparently the lamo area got about 4 times as much nieve as fanta se. woo hoo! love that country livin'. the plowers wouldn't even come in the hood until sabado. however, it's all melting now with 50 degree days. what a wierd winter.
our garden tools got a little buried!
glad it wasn't trash day.
pacito y yo took an adventurous walk to the mail box. it was supposed to be my last day of work before winter break. what a treat! love getting that "campus closed due to weather and road conditions" text!
the neighborhood looked magical.
paco loooooooves the snow. he eats any snowball you can chuck at him and can track lost tennis balls in over a foot of snow. yes, that's right, folks. he even helped pull me out this embankment after i went in to take this photo and got stuck. he came right back when i cried "help me, paco!" and he let me pull on his harness to get out since my legs were all twisted up in three feet of snow. i pretended he was my hero and felt like i was 9 again. he's a rad dog, wouldn't you say?
it's because of all the brussels sprouts we feed him.
wally was so cold she had to get in the infared sauna. she loooooooves a sauna and cries to go in when it's off and gets ticked if we let her in and it's not on. she a real baby boo bear who knows what she wikes.
here is are the bully bunnies hippity hopping through the snow.

fanks for weading!

Friday, November 19, 2010

progress

gearing up for winter here..just a few weeks or so ago this was the morning routine when N's sternum cracked and he was stuck in bed for weeks on end. i'd rush off to work and our beloved friend and caregiver, maria, would give N his sponge bath in bed. everyday we say, "thank God for Maria!"

for the last month he's been on his feet 2-3 times a day using the walker with assistance getting up (i can get him up on my own now!) and following with O2. however, his tendons are so fragile and the left one is on the verge of tearing so he has to be careful. this week he feels the compensation in taking pressure off his feet causing a spasm in his upper back from bracing the walker. he is bummed and couldn't walk tonight. nothing is easy or dependable in this circumstance except God's faithfulness to provide grace and faith in Jesus, our Savior, whom He sent to heal all pain and sin through a horrible death that ended in coming back to life forever which He also promises to all who believe it! taking this offer has changed my life for good and the hope and peace i have is beyond words.

on this part of the journey, we are thankfully continuing stem cell treatments and n has made some seeming progress. he has gained some weight!!!! this hasn't happened for over a year. and his face glows like nothing i've ever seen. such a handsome lad!!!!!!!! lucky me!!!!! if hollywood found out how good these little cells make you look they'd be on it and they probably are already. thank you again to those who have donated to this cause.
my other handsome boy... POWERMAN!!! thank you, God, for gifts on this earth to comfort us.

Tuesday, November 2, 2010

MEJOR with age!

vino

queso

los blue jeans

...y Cho!
Happy Birthday to an incredible woman, mother, wife, sister, friend, dog worshipper, gourmande, supershopper etc. etc. etc.!
We would be lost without you!!! Thank you for all of your love, mercy, and sacrifices for us little peanuts.
KISSES FROM JESUS TO YOU!!!!!!!

Saturday, October 23, 2010

two steps foward

it pretty much feels like 2 steps forward, 10 steps back around here, but right now we are in a couple of steps of progress. i hope.
steps back: about a month ago hils and maria were getting n up and his sternum "popped". we don't know if cracked or what (as it has done before), but he had to stay in bed for 3 weeks without getting up once. it was reeeaaaally depressing. then when he could finally get up he couldn't walk because his muscles were so weak that his tendons were tearing again (as they have done before... ever since mexico if you recall those days). however, his back is slowly healing so we could at least get him in the wheelchair to get in the bathroom for a spongey.
step forward: now he is actually using his walker while we wheel the O2 (photos in next post).

another step: despite the sternum and foot set backs, we may attribute some progress to the fact that n has been graciously given the gift of getting umbilical stem cell treatments. thanks to some very kind and amazingly generous donations, n has had 2 treatments. results are hard to tell with his issues being so layered, but possible benefits may be: 1. better white & red cell and platelet counts this month 2. gaining a couple of pounds. maria and i were giving him a high speed sponge bath this week before i dashed off to work and she pointed to his shoulder blades and said, "mas carne!/more meat!" she is so cute and she and n have such a special bond.

reality check: it's hard to get hopes up with what we've been through, but all i know is that i'm extremely thankful that we get to try these treatments. n has been wanting to do so for a long time. thank you, Lord, for the sweet people who have provided this chance. we'll keep you all posted. another eventful semi-disaster: pungent smell eminating from our bathroom for months. at first i tried to ignore it-- my usual first strategy for dealing with problems, but it didn't go away. then we had the "mold guy" come out and charge us a buttload of $$$ to tell us we had stachybotris (nefarious black mold) incubating in our dry wall in between the garage and bathroom (we had a couple of leaks in the summer). we are still getting it remediated (having a built-in cupboard and a good portion of the bathroom and garage walls etc. ripped apart so you could see clear through our bedroom to the garage and then cleaned up and repaired for another buttload of $$$). yikes.


meanwhile, it has been musical rooms around here with sleeping arrangements, but n is camping out in his mom's room, and while all the mess was going on i slept on the couch with paco for a little over a week (see above) while flora graciously woke me up after snoring all night with mom and dad who gets up at 3 am to work in his office/bedroom where hils remained sleeping, but now hils and i are back in my room where i actually sleep in my closet with my hito and hils is in our bed which is pretty much n's bed but really also mine (but used to be hil's) and n is still in his mom's room and waiting to move back anyday now until the last of the repairs are cleaned up which are being done by our neighbor dave who is a builder/architect/occasional movie extra who is in and out every morning patching up the dry wall while hils and i are still spaced out and looking embarrassed in our pjs and i forgot to mention that our other neighbor perry is the mold remediator (not the "mold guy"-- that's dan) and he also comes by to check in and he said that he has more work in NM because of all the crapola construction and plumbling which causes muchos problemas in this otherwise arid state. no big surprise given the work ethic here. they actually debated (and spent tax $ i'm sure) to change the state motto to "carpe manana" if that tells you anything. it's been sort of tiring as you can imagine. i can't WAIT until tubbery is back in our room because i really appreciate the space we share and hearing his sweet voice chime in with friendly and funny comments while we're all in the kitchen which is next to our bedroom.did you get all that, kids?another really crappy thing that happened is... nevermind!
just take note that if you dress like above don't expect to have a groovy time on a horseback ride for your birthday. i can't really mention details, but me and the person who had this really bad idea are really sorry and are so thankful to God for taking care of it and ensuring that no one was injured. ya es todo por ahora, amigos.
here's my lad putting up his feet and doing his daily heparin dose. what a trooper, wouldn't you say? thank you, Lord, for your mercy.

Saturday, September 25, 2010

dr. bro and wendy

el doctor was in....("a merry heart doeth good like a medicine..." proverbs 17:22) and he cheered us up mightily!the end of my time at home was blessed with two very dear and old friends who came to visit and help. #1 was our other mama, wendy, one of the cutest people i ever knew. she spent a weekend with us. she and hils and jd go waaaaaaaaaaaaayyyy back back back to the 60s... whoa dude... and have been through lots together. she and her boys were roomates with my mom and me when i was in high school. she helped me learn how to drive, sanitize the sink after cleaning raw chicken, and much, much more! we had not seen wen since we left CA 3 years back, so it was a very special treat. she was delightful and made our hearts very glad. she gave N a top notch pedicure, a big massage and lots of love. she loved paco, too! johnny was here as well so he wanted me to show wen the town a bit and to give me a day off. we had such a good time! we went to the farmer's mark up (sorry, but $8 for a bunch of arugula?! it costs un brazo y una pierna to shop there! it doesn't have to be that way!), counter culture cafe, and to some of my favorite galleries around the plaza. the mariachis were on stage to host the "king and queen of spain" to set off the local annual fiestas. vivan los conquistadores! this adorable couple was dancing in the rain.
we got to go to see the woodblock prints of one of my favorite southwest artists, gustave baumann (wendy's family name!), at one of my favorite local galleries. his american west scenes are soothing and quiet, and his colors are endlessly satisfying. it was such a relaxing day! thank you , dear wendell! we miss you so! our hearts were revived with your presence.our last guest of summer, was the former mcewan's scottish ale (no longer sold in u.s.!) northwest rep. en route from boston, paris, and denver to lamy. the infamous doctor eye visited his long lost, yet eternal pal on labor day weekend.
day 1: 4.5 hour crossword session, humbolt fog and porter
6 letter word for this activity; first letter is b and the last 4 letters are r-i-n-g. so glad they were on the same page... literally. for hours. sorry, just not my forte!

tim was an incredible servant to nathanael AND to me the ENTIRE weekend.
N used to be taller than tim. we were all a bit disoriented at first to see the height difference as tim always remembered N having an inch on him. n has gone from 5'11" to 5'7" due to his osteoperosis.
tim did about five million thousand dishes and tons of other chores while also helping his best friend ALL day as we prepared for the arrival of my in-laws and flora with lots of regular and special cooking. he now knows how to peel roasted poblanos and grate cheese in the cuisinart! i have to say that he will have the record for most chores done by a visitor in one day... and that is no small contest! i don't even think he knows what happened (the lunchtime beers helped:), but if he wasn't around i would have imploded.

i have not seen n so happy and so carefree for a long time. really carefree! geesh, tubbery. at times i felt i was in the boy's locker room, but it was all medical. there is a special bond between these two that is a gift from God. we sent the lad on his merry way, because as you can see below he has his hands full. thanks for lending us the devastating man, abbs. he is going to make an unbelievable dad!

here's to the new lad or lassie--paco's new playmate!

thank you wendy and tim for ministering to our needs and hearts in this most challenging season of life. you guys are both a kiss from Jesus!

Thursday, August 19, 2010

host of helpers

august has been challenging, but sprinkled with some special visits and helpers. first of all, i got to see my mama's mama, gramma bamma, for the first time in over 2 years. she was born just over those hills in the distance. she visited her tia in her home town of mora, and then made a special trip to santa fe to see us. she and her amazing husband marty and my wonderful aunt (well... my mom's cousin, but i call her an auntie) jennifer came to our house one day and we met in town for dinner the next day. they doted on N, or natty, as bamma calls him:):):) and brought calabasitas and peas from our relatives gardens in mora...
fee bird was also here at the time since her dad had to return to california to do much needed work. she was AWESOME and adorable and made great progress with N. see... no oxygen and she got him outside and he was only holding one hand. we were so excited. she would make N laugh a lot and he would have to say: "i'm not listening, i'm not listening" so as to prevent any cracking up. she's the best! fee was very disheartened to hear that the saturday she left, N had a huge setback while her dad was taking her to the airport. after his sponge bath, he literally clung onto me for 20 minutes in a severe spasm that left him panting over my shoulder and completely locked up. thankfully maria showed up and she, hils and i got him painfully back into bed. he stayed there until tuesday afternoon. our best friend, meag had flown in sunday night to help while johnny took hils and flora to california to her dad's cabin for a much-needed vacation (to say the least!!!). we were so grateful to get him up and down safely. meag did amazing and was a refreshing breath of air and reminder of our beloved tacoma. it was sad to see her go and was a mini-vacation for me since she did ALL the dishes all day, was a calming presence to talk to, and helped so intensely and kindly with N and me. thank you, supermeago! we love you!!!!!
thank you, EVERYONE, who is helping in heart and in person. i know so many want to do something or say something to help, and every bit of love goes a longer way than you know. it means so much to me just to know people are reading this and are praying and caring more than i can see. thank you.
i will keep you posted.